Sunday, 24 April 2016

Keep fighting!

First off, happy, happy birthday to Matt!!! This year has been tough and you have been an amazing support through it all!!
I actually have some pretty exciting news! I was able to speak with a lady yesterday whose daughter has the same diagnosis as Anna!!! It may not seem very exciting to others, but to have a conversation with someone who truly understands what we are going through, was amazing. It was so nice to speak with someone who could pronounce dysautonomia.  We talked about all of the struggles and how hard it is to watch our daughters go through this. We talked about how little the medical community knows and how many incorrect diagnosis' they give. How doctors just assume there is nothing wrong with them because by the time they get to the hospital, nothing shows up. We talked about all of the hospital visits and medical appointments. It was like a breath of fresh air. I didn't have to try and convince her that Anna is sick, She knows how sick she is because  her daughter is the same. Her daughter has missed tons of school and is unable to do the activities that she used to. As sad as this is, it was nice to know that someone is facing the same battle. It was nice to reach out and connect with another person who understands the severity of it, the sadness of it, and the heartbreak. It was also nice to talk to each other about how strong our daughters are. They are fighters and determined to get well. Even though the journey seems endless, and so, so hard, they keep putting one foot in front of another. Keep fighting!
If you click the link below, there is a little video of Anna's journey so far!

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