I'll go back to my previous post. I made a Dr's appointment to discuss dysautonomia with my family physician. My goal of the appointment was to try and find someone, anyone, that was local who had any understanding of this diagnosis. I also really wanted Anna to go back and do the stress test on the treadmill. I felt like I couldn't rest easy until that was done. I walked into the appointment with some hope. I sat down in the room and waited for the Dr. The door opened, and in walked a resident Dr. (He was amazing) Anyways, he sat down and asked what he could do for me. I explained that what I really wanted was to speak with a Dr locally who had some knowledge about dysautonomia. I explained that we felt a little bit alone trying to figure this all out and what steps we should take. He was very kind, but he looked at me and said that I would be lucky to find a Dr in all of Western Canada that could help. Once again, I felt like I was punched in the gut. The roadblocks seemed endless. We spoke for quite a while then my Dr came into the room as well. I explained my frustration. He was really good and agreed that Anna should complete the stress test. He said he would get in touch with Children's and get the appointment set up. I left the office encouraged that she would get the stress test done, but discouraged that I couldn't seem to find any answers. I wasn't ready to believe that there was nothing that could be done. So the fight continues.
|Laying in the hospital bed|
|Laying in the hospital once again after being taken there by ambulance.|
|Picture on the left is of course, children's! The one on the right is during one of her episodes. She is laying on the kitchen floor unable to move and her hands etc are seized up. This one lasted almost an hour.|